PROFESSIONAL BIAS -Your voice matters

Medical professional bias refers to the tendency of healthcare providers to have preconceived notions or preferences that may impact their medical decisions, treatments, or interactions with patients based on factors such as personal beliefs, stereotypes, or past experiences. This bias can affect the quality of care and patient outcomes.

Would you like to complete our short, anonymous, questionnaire ?

There is a lot of research available on Professional Bias.

We, Ruby’s Voice Trust, are wanting to gather information from people with recent experience of Professional Bias whilst accessing healthcare.

Our aim is to see how deeply embedded Professional Bias is in the healthcare system.
From this information we will determine the approach Ruby's Voice Trust takes to support those with, but not limited to, Gastroparesis and Ehlers Danlos and other comorbidities , and the roadblocks encountered.
Ruby and Steph suffered immeasurably as a result of Professional Bias and it is a something we, as a Trust, are passionate about addressing.
We would like to really challenge and combat the Professional Bias that is too often experienced. And that may mean holding those, who knowingly repeat the behaviour, to task.

The questionnaire has an "other" box in which we would value any opinions you may have. Also feel free to email us with further suggestions, any input you have is welcome. rubysvoicenz@gmail.com

The Trustees intend to do their best, on behalf of those who are unable to advocate for themselves, or feel speaking out could jeopardise their current care, to have a voice.

1. Have you experienced any challenges in receiving appropriate medical care for your conditions due to professional bias?

2. Have you encountered skepticism or disbelief from healthcare professionals regarding the validity of your Gastroparesis and Ehlers-Danlos syndrome diagnoses?

3. Do you feel healthcare providers have minimized or dismissed your symptoms related to Gastroparesis and Ehlers-Danlos syndrome?

4. Have you experienced delays in receiving appropriate treatment due to medical professionals' lack of understanding or knowledge about your conditions?

5. Have healthcare providers ever attributed your symptoms to psychological factors rather than acknowledging the physical manifestations of Gastroparesis and Ehlers-Danlos syndrome?

6. Have you felt judged or stigmatized by healthcare professionals because of your conditions?

7. Have you encountered difficulties in getting referrals to specialists or receiving comprehensive care for your Gastroparesis and Ehlers-Danlos syndrome?

8. Do you think there is a bias in the medical community that affects the quality of care provided to individuals with Gastroparesis and Ehlers-Danlos syndrome?

9. Have you ever had to advocate for yourself excessively to ensure your medical needs related to Gastroparesis and Ehlers-Danlos syndrome were met by healthcare professionals?

10. Do you feel supported and listened to by your current healthcare team in managing your conditions?

Optional: If you would like to offer an opinion please send us an email with your thoughts to Question 11.

11. In your opinion, what steps can healthcare institutions take to address and mitigate professional bias towards patients with Gastroparesis and Ehlers-Danlos syndrome?

Complete our Survey on "Professional BIAS" - Your Voice Matters

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PROFESSIONAL BIAS -Your voice matters