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working with Dr Tim Angeli-Gordon developing leading edge technology.
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Ruby's Story
It is also a story that reflects the level of care and treatment received by many of the sufferers of Gastroparesis and chronic illnesses, in both New Zealand and overseas.
Ruby died on April 29th 2019 after a fiercely fought battle with Idiopathic Gastroparesis. This is not the outcome we could have ever expected. She showed exceptional strength and bravery and we are stepping up to the plate to continue to raise her voice.
Ruby had been a fit and well young 19 year old, hours off gaining her pilots license, when she had an appendectomy in October 2015. She never recovered from the operation and returned to hospital many times in search of answers to explain her pain and inability to hold food down.
Ruby had lost all the motility of her stomach and was eventually diagnosed with Gastroparesis. Her journey through seeking diagnosis and treatment was complex and challenging.
The following is her story and highlights the difficulties that she experienced with her care during her many many hospital admissions.
How labels of "its all in your head" and "anorexia" prevented her from being given the treatment she needed.
It was Ruby’s desire throughout her illness to improve care for not just herself, but anyone else struggling within the medical system.
Gastroparesis Awareness
Although Gastroparesis is not widely known about by health providers or the general public, there is actually a lot of information available globally. It is often a case of this information requiring time and an invested interest to research.
By sharing Rubys's story and those of other suffers we aim to offer insights to diagnosing / treatment and management. We are not medical professionals nor claim to know it all, but through someone elses experience opportunities exist for further understanding.
We hope to see continued education and research around Medicinal Cannabis to give patients, safe and affordable pathways here and across the globe .
To advocate for patients to have choice in their treatment and without prejudice that it can include Cannabis.
It was always Ruby’s intention to bring a well-informed view to patients seeking knowledge around cannabidiol treatment.
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"One day you’ll tell your story of how you overcame what you went through and it will become someone else’s survival guide"
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